Me trying to crawl

Me on Boxing Day on my Rocking Horse

Me on Christmas Day

Monday 22nd December

It has been a very busy day today, I had a hair appointment this morning, I didn't have split ends but my hair was getting very long. The hairdresser did a nice job and I think it looks quite nice, but I did make a lot of noise when she was cutting my hair, mostly the screaming noise! They eventually gave me a Hob Nob which calmed me down a bit, this was after my daddy's bribe of chocolate buttons had failed miserably. I think he was glad to leave!

I then went to Alder Hey for a check up, after suffering the humiliation of being weighed and measured I had my sats checked and they were 91%! My highest ever score! My consultant did a scan and said he could see my right pulmonary artery in my heart, he says he has never seen it before on an echo scan. My mummy and daddy said that it was the best Christmas present they could have hoped for, but I was confused, doesn't Santa Claus bring the presents down the chimney? Parents are so silly sometimes!

After my check up I went to visit ICU and then the Top of K2 to wish all the doctors and nurses a Very Happy Christmas. Also, I would like to wish a Very Happy Christmas to all my really brave friends and their mummy's and daddy's who will be spending Christmas at Alder Hey.

My favorite player Wayne Rooney's wife Colleen will be on the tele on Christmas Day as she is visiting Alder Hey, it is on ITV at 9:25am. I have promised my mummy that I will allow the tele to be switched from Play Disney to watch it.

Sunday 21st December

This week I had another RSV jab at Macclesfield, again because I am so big I had to have 2 injections. I vented my frustration in an appropriate manner by letting the whole hospital know that I was not impressed! I have a really loud voice now as well!

I have started to sleep a bit better according to my mummy and daddy, I only have the occasional 'really bad' night now. Although this week my daddy came home drunk and woke me up! He says he was not drunk, only a bit fresh. Well, he didn't look very fresh to me at six thirty the next morning!

I went to visit my friend Alfie today, he is very clever as he can walk all by himself and is doing really well. He was very affectionate with me and kept trying to kiss and cuddle me. I was very flattered until he started getting a bit too frisky by trying to wrestle me onto the floor, boys! It was really nice to see him though.

Sunday 14th December

Another week, another hospital visit, this time I went to Macclesfield to see my consultant for a review and to check she was OK. Apparently I am developing well, but she has referred me to the Shoeman so I can have some sturdy boots made. The sturdy boots will help me walk and stop me getting an offset foot like my daddy. His friends say he struggles to keep the football from going over the bar when he had a shot, and I don't want that do I?

I have been busy this week shopping, I took my daddy out on Saturday, I don't think he likes shopping but he likes hanging out with me! I was in full voice singing in the shops and I made lots of people laugh.

I went to Manchester on Sunday to see the Christmas markets, we bought a decoration for my Christmas tree at home, it is the first time I have been to a city, it was sooo exciting!

Sunday 7th December

This week has been hospital and doctor free, no trips to hospital or the clinic, just my usual visit from my community nurses for a sats check.

All I want to do at the moment is walk, walk and walk some more, I have also learnt to stomp my feet in the kitchen which has made my giggle lots!

I gave my mummy a shock this week but it was a nice one for a change! When she came into my room after my morning nap I was sat up in my cot, I did it all by myself!

I have even slept though the night which again gave my mummy and daddy another shock, although it was only a one off. My mummy and daddy had dared to go to a party on Saturday night, without me........so I repayed them by having an all night party of my own on Sunday night. Te he!

Sunday 30th November

Its been another busy week, I had to go to Alder Hey on Thursday to see my consultant. I made my mummy laugh whilst I was waiting for my echo scan....let me explain. Before being echo scanned, all of us cardiac babies have to be weighed...naked! Then measured, they allow you to have a nappy on for that to keep a bit of dignity. After a sats check you have to wait in another waiting room, well I am into walking (assisted) so I insisted on avoiding boredom by walking around in just my nappy and shoes. Apparently it was funny!

I also had to go to the clinic in Macclesfield for my 12 month injection, I was a bit confused though because I am nearly 16 months! I wasn't allowed to have it before my operation.

On Saturday I went to my friend Grace from Alder Hey's 1st birthday party, there was lots of babies and I had a great time spending most of the time walking (assisted) around the house.

I have been sleeping a little better, only waking a couple of times on a good night, my mummy and daddy have introduced the 'Margarets' to keep me all snug. The 'Margarets' are cute hand made cardigans from Dove Holes named after the manufacturer and they are very warm!