There has been lots of discussions about me today, they say I have got to stay in hospital until I have my next surgery!
I won an almighty battle yesterday though, at Macclesfield they tried to put a cannula in me so they could start a new drug, but I refused to allow it! They had to retreat and have since decided that injections will be OK, I am still not happy though because injections hurt! Later on at Alder Hey we agreed to a compromise, a mini cannula in my leg so the injection won't hurt. I have been looked after by Lindsey, Andrea and Judith.
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