Sunday 23rd November

This week I went to Macclesfield Hospital for my RSV injection, I have to have this to stop me getting Bronchitis! Because I am so big this year, the nurse has to give me 2 injections as one is not enough, although I didn't flinch when she did them!

I found another stitch in my chest this week, it was hiding under a scab on one of my bullet wounds, what a clever stitch, it liked me so much it didn't want to be taken out! My mummy had to call my community nurses to ask them to come and remove it, I would have phoned them myself, I can use the telephone but these adults don't seem to talk my language, ba ba ba!

I have learnt how to nod and shake my head, everyone thinks it is really funny.

Would you like some custard Hannah?.... Nod my head.

Would you like some cottage pie Hannah?....Shake my head energetically!

I am still giving my mummy and daddy sleepless nights, not in the hospital worry kind of way, but the I want to play kind of way! They are so boring because they won't play, but I do make them laugh sometimes by acting all cute at 4 'o' clock in the morning!

Sunday 16th November

I had to have my chest stitches out this week, and it hurt! My community nurses came in force, one to hold me down, and one to remove the stitches. I cried a bucket load of tears! I now have two lines down my chest and seven scars which look like bullet wounds.

To cheer me up, I went shopping for my first pair of proper shoes from a proper shoe shop, I am walking around so much that I thought I needed some new ones. I was measured up properly to obtain my vital statistics, and I purchased a lovely pair of brown & pink cruisers, ace! I even had my photo taken in the shop for a keepsake, these paparazzi get everywhere, they are even going down my friend Alfie's throat to take a picture! Good luck Alfie, I will come and see you soon to compare notes from our echo scans.

This week I watched Children in Need, it had a little boy on who also has a poorly heart, he goes to a place called Zoe's Place so his mum and dad can have a rest. I have a friend called Matthew from Alder Hey who also goes there, he is really nice, he bought me a polar bear, not a real one silly, called M W Bear on the day I had my operation, which was really sweet!

I am settling back into my house nicely and playing with my toys loads, I have so much energy since my operation. My mummy and daddy look tired though, they can't keep up with me now, I am constantly on the move (with assistance) and I keep them up for all night parties, they must be getting old!

Wednesday 5th November

I had to go to Alder Hey today for a check up, I was not impressed with having to be weighed and measured and even less impressed with being echo scanned, although I did stop crying when I was allowed to play with the machine. My doctor said everything was working well which is good.

I then had to have my drain stitches taken out, ouch it hurt, but I did feel better when the nurse said she was a Blackburn fan, that must be really painful!

There have been lots of noisy noises tonight near my house so I decided it would be fun to stay up all night for a party with my mummy and daddy, I thought it was great fun!

At Home on Sunday

At the Halloween Party on Friday

After my Operation on Monday

Sunday 2nd November

The doctors came to see me this morning and said I could go home, ace! So my mummy and daddy packed all their things from Pluto and off we went, via Toys R Us at Warrington on the way home of course!

I went to visit ICU on the way out to say thank you to everyone for looking after me, I also said thank you to all the doctors and nurses on the top of K2 for looking after me.

When I got home I was so excited and I decided to go for an 'assisted' walk around with my mummy, we also had a mini party for my uncle Nick because it is his birthday today, he is really old though!

I have been looked after today by Di and my mummy and daddy. I have got to go back to Alder Hey on Wednesday for a check up so I will update my blog afterwards.

Saturday 1st November

The night nurses took my oxygen away, they tricked me when I was asleep by pinching my elephants truck, but it was OK because I stayed pink!

My doctors did an echo scan on my heart and lungs today to make sure there was no fluid left, apparently I had some fluid on my right lung a couple of days ago but everyone thinks its gone now. They also took out my 'access' which was the drip line for my drugs, I have to eat them now and they are horrible. Bluur! They are so bad I am having to revert to being sick to show my displeasure.

Other than being sick I have had a nice day watching telly and I even went for a walk down the corridor with my grandma and grandad. I have been looked after today by Sarah & Nina.

Friday 31st October

Its Halloween on the top of K2 and there was a big party in the afternoon where all the staff got dressed up. As I have managed to cope with less oxygen, the nurses said I could go to the party for ten minutes, so I did. I got all dressed up in a pumpkin bib and scary mask which was perched on my head, my mummy had a witches hat on as well, it was great.

I have had an elephants trunk for most of the day, a big grey pipe which has been pointing my oxygen at my nose, but it has helped me keep my oxygen levels in the pink zone.

Today's medical procedures were limited to removing the pacing wires from my heart, they pulled them out of my chest right in front of my eyes, and with no pain relief! I do admit to crying, just a little bit!

I have been looked after today by Lisa, Sarah and Paula, as well as a host of strange creatures from the top of K2 Halloween party!