Routine! They keep banging on about routine so I have got into my own cheeky routine. At six o clock on Tuesday I returned all my milk back to my dad, covering all his trousers & jumper as well as the settee. Sick everywhere! Just for fun I did exactly the same on Wednesday, same time, same place the only difference was my dad's jeans & jumper were different. He He, that will teach them.
Today I became a visitor to Alder Hey, I went to see my consultant for a check up. I got to have an echo scan which was OK and I was weighed which showed I have put some on, which is good as I am trying to become 'Curvy'.
At home I have had lots of attention from my Grandma Rita and Grandad Phillip as well as my Gwenma and my Grumps, who has bought my dog Chester to visit me, no overnight stays though, just outpatients. I like the attention, it is great!
I would like to take this opportunity to inform everyone of a comedy event in the near future. My dad and some of his and my friends have jumped on the bike-wagon of fundraising and will be joining a cycle ride organised by my friend Alfie's mum and dad.
The ride will be on the 2nd December and will be from Chapel to Alder Hey.
My dad hasn't rode a bike for about ten years and his friends are not the fittest so it should be fun watching them undergo some pain for a change, it is about 50 miles!
The funds that are raised will be going towards Ronald McDonald House at Alder Hey so it is available for my mum and dad when I have to go to hospital for more operations. The funds are also to say thank you for letting my mum and dad stay for more than 7 weeks!
If anybody would like to sponsor my dad please email me on my dad's address which is kevin.storer@btopenworld.com.
Also, if anybody would like to sponsor my friend Alfie's dad, please email Alfie on frawlsrus@hotmail.com. Alfie (aka my local rival) has had a similar start in life to me and also has a brilliant story to tell!
Of course, if anybody would like to take part they will be more than welcome, just send us an email!
I would like to say many thanks in anticipation of the support for the event. I will update my blog next week with an update of how I am doing. Lots of Love Hannah!
Thursday, October 25, 2007
Wednesday, October 24, 2007
Monday, October 22, 2007
Sunday 21st October
Today my real life dog Chester came to visit me. It was really fantastic to see him but he had to go back to my Grump and Grandma Gwen's at night because I am demanding all of my mum & dad's attention at the moment. I think we will have him back next week, although we might have to serve a notice of demand to my Grumps as he thinks Chester wants to stay at their house! Silly Grumps, as soon as I flutter my eye lashes we will have Chester back quick smart!
Nurse Clare came to see me again and she bought a student nurse as well, my educational reputation has followed me from Alder Hey. The nurse dared to swab my mouth so I threw a ferocious diva tantrum which surprised Clare a bit. My mum & dad weren't worried though because I only wanted my nappy changing. I just needed to let the Macclesfield staff know who was boss!
I have fed well, slept well and behaved exceptionally, even if I say so myself!
As I am now home and not a great deal happens (my mum & dad try hard but adults are a bit boring!) my next blog update will be after my trip to Alder Hey on Thursday later this week. I will try and educate myself and put some pictures on the website for everyone to seeready for the Thursday.
Nurse Clare came to see me again and she bought a student nurse as well, my educational reputation has followed me from Alder Hey. The nurse dared to swab my mouth so I threw a ferocious diva tantrum which surprised Clare a bit. My mum & dad weren't worried though because I only wanted my nappy changing. I just needed to let the Macclesfield staff know who was boss!
I have fed well, slept well and behaved exceptionally, even if I say so myself!
As I am now home and not a great deal happens (my mum & dad try hard but adults are a bit boring!) my next blog update will be after my trip to Alder Hey on Thursday later this week. I will try and educate myself and put some pictures on the website for everyone to seeready for the Thursday.
Sunday, October 21, 2007
Saturday 20th October
My mum & dad are learning how to become chemists, I am quite high maintenance and demand lots of attention including my cocktail of medicines every three hours. I am very nice because I do give my mum & dad a six hour break from medicine overnight, but I do demand to be fed halfway through the medibreak. He He.
One of my medicines is called Don Perignon, like I say, high maintenance! My mum & dad and my grandies had their own medicine last night to celebrate me coming home, but it wasn't quite Don Perignon so I wasn't interested.
I have now moved onto the Macclesfield social scene and was visited by nurse Clare from Macclesfield Hospital. She has requested a cuddle tomorrow, hmmm I will consider the request carefully overnight.
I really like Saturday's, I got to watch Football Focus and then Everton versus Liverpool, I am a bit worried about match fixing by my friends in the Liverpool Mafia, they need to be careful they don't get caught. I then watched my favorite player Rooney score twice against the mighty Villa, ace! My dad says he wants to play them every week!
After watching the Rugby and Match of the Day I went to bed and slept most of the night with only one diva moment!
I have been given lots of food by my mum & dad and I am guzzling nearly all of it because it is soooo nice and I behaved really well all day. It is much quieter at home which is a bit strange but it is nice!
One of my medicines is called Don Perignon, like I say, high maintenance! My mum & dad and my grandies had their own medicine last night to celebrate me coming home, but it wasn't quite Don Perignon so I wasn't interested.
I have now moved onto the Macclesfield social scene and was visited by nurse Clare from Macclesfield Hospital. She has requested a cuddle tomorrow, hmmm I will consider the request carefully overnight.
I really like Saturday's, I got to watch Football Focus and then Everton versus Liverpool, I am a bit worried about match fixing by my friends in the Liverpool Mafia, they need to be careful they don't get caught. I then watched my favorite player Rooney score twice against the mighty Villa, ace! My dad says he wants to play them every week!
After watching the Rugby and Match of the Day I went to bed and slept most of the night with only one diva moment!
I have been given lots of food by my mum & dad and I am guzzling nearly all of it because it is soooo nice and I behaved really well all day. It is much quieter at home which is a bit strange but it is nice!
Saturday, October 20, 2007
Friday 19th October
Today I purchased some new wheels! I have been behaving really well so my nurses decided I had earned a ride out in some shiny new wheels. After buzzing around the top of K2 for a while, my mum and dad drove me all the way to Intensive Care to say thank you, goodbye and see you sometime in the future. I also took them a photographic portrait of me to put on their Hall of Fame display board.
Today my new wheels will be taking me home!
In ICU I saw one of the doctors who helped me when I was arrested when I made my dramatic entry into ICU and who helped me come off the ECMO machine. She was very happy that I was going home, I think they are going to miss me!
I sent my dad to clean out my room on the top of K2 and to make sure my entourage of fluffy friends were safely secured in my car. He then had to go and clean up in Ronald MacDonald House and make sure my bear napped friends were released safely.
After collecting my medicine and food I said Au Revoir to all the nurses on the top of K2 and to Andrea who had helped sort out my new wheels. I would like to thank all the ICU Doctors and Nurses and the top of K2 Doctors and Nurses for helping my poorly heart get well enough to go home!
When I got back to my House there were some Welcome Home banners all across the front of my house, thank you to my Grannies for their creative flair! Nice! Thank you also to my Grumps for the vision behind the creation!
Again I would like to say thank you to all the Alder Hey staff for helping make my poorly heart well enough to go home! See you all soon!
Today my new wheels will be taking me home!
In ICU I saw one of the doctors who helped me when I was arrested when I made my dramatic entry into ICU and who helped me come off the ECMO machine. She was very happy that I was going home, I think they are going to miss me!
I sent my dad to clean out my room on the top of K2 and to make sure my entourage of fluffy friends were safely secured in my car. He then had to go and clean up in Ronald MacDonald House and make sure my bear napped friends were released safely.
After collecting my medicine and food I said Au Revoir to all the nurses on the top of K2 and to Andrea who had helped sort out my new wheels. I would like to thank all the ICU Doctors and Nurses and the top of K2 Doctors and Nurses for helping my poorly heart get well enough to go home!
When I got back to my House there were some Welcome Home banners all across the front of my house, thank you to my Grannies for their creative flair! Nice! Thank you also to my Grumps for the vision behind the creation!
Again I would like to say thank you to all the Alder Hey staff for helping make my poorly heart well enough to go home! See you all soon!
Friday, October 19, 2007
Thursday 18th October
The revenge of the Pink Ladies! After yesterday's rebuke they came back in force with a cunning plan. They had obviously gone back to their headquarters and developed a battle strategy!
The element of surprise came when my feeding times were switched during the night so I got my morning bottle at 7am giving time for my tummy to settle.
Then 8.30am on the dot, in they came. After a bloody battle with me doing my best to defend, they managed to steal just enough of my blood before retreating to their laboratory! They didn't get as much as they wanted though, so I guess that is a morale victory for me! Sometimes you have to lose a battle to win the war.
I received another special delivery via Grandma Rita's courier service, it was a mobile telephone for babies and some books, these will help me call for help the next time the Pink Ladies return. I would like to thank Pat for the kind thought.
In the afternoon my mum, dad and my grandies had to go to resuscitation training to learn how to give basic life support in case of any emergencies. I don't know what emergencies they are expecting? Not running out of milk for cups of tea seems to be quite high up on the list.
I was looked after today by Naomi in the morning, Andrea in the afternoon and by Katie at night, ably assisted by my dad for part of the night and my mum for the other part. Routine they keep on about, well what chance have I got if my mum & dad can't even keep to one. Silly adults!
The element of surprise came when my feeding times were switched during the night so I got my morning bottle at 7am giving time for my tummy to settle.
Then 8.30am on the dot, in they came. After a bloody battle with me doing my best to defend, they managed to steal just enough of my blood before retreating to their laboratory! They didn't get as much as they wanted though, so I guess that is a morale victory for me! Sometimes you have to lose a battle to win the war.
I received another special delivery via Grandma Rita's courier service, it was a mobile telephone for babies and some books, these will help me call for help the next time the Pink Ladies return. I would like to thank Pat for the kind thought.
In the afternoon my mum, dad and my grandies had to go to resuscitation training to learn how to give basic life support in case of any emergencies. I don't know what emergencies they are expecting? Not running out of milk for cups of tea seems to be quite high up on the list.
I was looked after today by Naomi in the morning, Andrea in the afternoon and by Katie at night, ably assisted by my dad for part of the night and my mum for the other part. Routine they keep on about, well what chance have I got if my mum & dad can't even keep to one. Silly adults!
Thursday, October 18, 2007
Wednesday 17th October
A victorious start to the day, I woke and guzzled a full feed from my bottle, not one drop needed to go down my tube. Obviously I timed my feed to perfection because just as I had finished the Pink Ladies turned up. My dad asked them if they could come back a bit later because he thought I would give him my food straight back all over him if I had the pain of the heel prick test. He played his trump card because he said I had just had my medicine as well so this would probably be returned also. They said they couldn't come back so the doctors would have to do it later, result! Then even better, the doctors said that I didn't need to have the test done today, even better!
In the afternoon I had been feeding sooo well from my bottle they pinched my feeding tube and even worse they took my sats monitor away (Only for an hour though) so in the afternoon I became Wireless Han! Cool!
Later in the evening I went to the Outpatients Department of the hospital to have a scan to check my heart was OK, which it was. My mum and dad were talking about genetics with the cardiologist and discussing me having brothers or sisters when I am older. As they didn't have the courtesy to ask me my opinion on the matter, I thought I would intervene by trumping loudly repeatedly which made them all laugh. I have officially poo poo'ed that idea!
I was looked after by Denise in the morning, Naomi in the afternoon and at night my dad camped out on the top of K2 and had to do all the barking himself! (Although Katie did help him sometimes)
In the afternoon I had been feeding sooo well from my bottle they pinched my feeding tube and even worse they took my sats monitor away (Only for an hour though) so in the afternoon I became Wireless Han! Cool!
Later in the evening I went to the Outpatients Department of the hospital to have a scan to check my heart was OK, which it was. My mum and dad were talking about genetics with the cardiologist and discussing me having brothers or sisters when I am older. As they didn't have the courtesy to ask me my opinion on the matter, I thought I would intervene by trumping loudly repeatedly which made them all laugh. I have officially poo poo'ed that idea!
I was looked after by Denise in the morning, Naomi in the afternoon and at night my dad camped out on the top of K2 and had to do all the barking himself! (Although Katie did help him sometimes)
Wednesday, October 17, 2007
Tuesday 16th October
The surgeons came to see me this morning, they want to take my stitches out. After careful consideration I decided it was an appropriate time. I didn't cry once whilst the surgeon removed my stitches, my nurse Denise asked me if I wanted to keep them as a memento. A memento? I think my entry into the 'zipper' club will act as a memento so I tactfully declined the offer. My scar looks like a cool tattoo though and I didn't have to pay for it!
Later on the speech therapist came to see me which confused me. I know I am clever but to expect me to talk when I am 9 weeks and 3 days old is asking a lot, even for me. Anyway, she persevered and seemed to be happy watching me eat my dinner, which was out of a bottle.
My dad, my nurse and the speech therapist seemed to be really happy watching me enjoy my dinner, I have heard the hospital canteen is not the best so they must be jealous of my milk.
I received a letter via special delivery today, my Grandma Rita delivered it. It was a get well card from Manchester United homemade by my friends from the 'B' team. Many thanks to Little Matthew and Mere, I am very impressed!
My reputation within Alder Hey has spread, one of the doctors asked me to help her with some revision today, apparently she has an exam on Wednesday and she needed my help, so naturally I was keen to support her.
I was looked after by Denise, Maureen and my mum at night with the help of Naomi. I had a good night and slept for most of it.
Later on the speech therapist came to see me which confused me. I know I am clever but to expect me to talk when I am 9 weeks and 3 days old is asking a lot, even for me. Anyway, she persevered and seemed to be happy watching me eat my dinner, which was out of a bottle.
My dad, my nurse and the speech therapist seemed to be really happy watching me enjoy my dinner, I have heard the hospital canteen is not the best so they must be jealous of my milk.
I received a letter via special delivery today, my Grandma Rita delivered it. It was a get well card from Manchester United homemade by my friends from the 'B' team. Many thanks to Little Matthew and Mere, I am very impressed!
My reputation within Alder Hey has spread, one of the doctors asked me to help her with some revision today, apparently she has an exam on Wednesday and she needed my help, so naturally I was keen to support her.
I was looked after by Denise, Maureen and my mum at night with the help of Naomi. I had a good night and slept for most of it.
Tuesday, October 16, 2007
Monday 15th October
I have learnt how to Gurn today, I am so good I am thinking of entering the national championships. The technique I have mastered is to spit my dummy across my big girls cot, adjust my bottom lip to protrude as far as the end of my nose and position my bottom lip to be a perfect straight line whilst letting out a low pitched moan. Genius, even if I say so myself. It is making my mummy and daddy laugh which is nice!
I used to have an imperfection that would have guaranteed me first place but Alder Hey produced a minor miracle and made it go away. My imperfection was a funny left ear, when I was born it used to stick out quite a lot more than my other ear giving me a slightly lopsided look! The doctors didn't mean to do it but one of the medicines wound my ear in and it now matches the other side. Magic!
I have been having a bit of cold turkey again today so my mum and dad tried to cheer me up by putting the Jungle Book on my private TV/Video combo. My Grandma Rita and Grandad Phillip turned up as well to watch it. We all had a great time and I stayed awake and watched it all, well most of it!
I was looked after by Lisa in the day and by my mum at night with a bit of help from Naomi and I had a really nice chilled night on top of K2!
I used to have an imperfection that would have guaranteed me first place but Alder Hey produced a minor miracle and made it go away. My imperfection was a funny left ear, when I was born it used to stick out quite a lot more than my other ear giving me a slightly lopsided look! The doctors didn't mean to do it but one of the medicines wound my ear in and it now matches the other side. Magic!
I have been having a bit of cold turkey again today so my mum and dad tried to cheer me up by putting the Jungle Book on my private TV/Video combo. My Grandma Rita and Grandad Phillip turned up as well to watch it. We all had a great time and I stayed awake and watched it all, well most of it!
I was looked after by Lisa in the day and by my mum at night with a bit of help from Naomi and I had a really nice chilled night on top of K2!
Monday, October 15, 2007
Sunday 14th October
They have now sent all my horse tranquilliser back to the vets, I am now off it...for now. I am now only on a lower strength sedative, the stuff normally used on lions and big cats like that. I have a new lion that was delivered to me by the Liverpool mafia, I have called him Peter in honour of the Anfield legend Mr Crouch. He He! I really like Peter the Lion he makes me laugh, my dad says the Anfield legend Mr Crouch does the same to him!
I received a visit from my friends Mark & Carla this morning, they talk like they are from round here. They bought me a nice fluffy bear that we all agreed would be called Charley and I would like to thank them for the bear and the visit!
Another great sporting day, I sat in my bouncy chair and watched the British Touring Cars on my private television with my dad. I was busy practicing my driving by moving my right foot forth and back in preparation for my first drive! It was making my dad chuckle. Silly!
I got to go for a walk today in my pram with my mum and my dad and we even went outside the hospital for a couple of minutes, it was ace!
My nurse in the day was Claire and Naomi at night. My dad camped out on the top of K2 with me and we had a great time. Naomi did most of the work and my dad helped play with me, he says there is no point having a dog and barking yourself! I have got a dog called Chester and he does the barking in our house so I guess I agree with my dad on this one.
I received a visit from my friends Mark & Carla this morning, they talk like they are from round here. They bought me a nice fluffy bear that we all agreed would be called Charley and I would like to thank them for the bear and the visit!
Another great sporting day, I sat in my bouncy chair and watched the British Touring Cars on my private television with my dad. I was busy practicing my driving by moving my right foot forth and back in preparation for my first drive! It was making my dad chuckle. Silly!
I got to go for a walk today in my pram with my mum and my dad and we even went outside the hospital for a couple of minutes, it was ace!
My nurse in the day was Claire and Naomi at night. My dad camped out on the top of K2 with me and we had a great time. Naomi did most of the work and my dad helped play with me, he says there is no point having a dog and barking yourself! I have got a dog called Chester and he does the barking in our house so I guess I agree with my dad on this one.
Sunday, October 14, 2007
Saturday 13th October
Today is my nana's birthday, I have been practicing my counting but have not yet got off one hand so I think I have a bit more work to do.
I love Saturday's. I had the bestist day today, it began with a lowish point, the pink ladies came to visit me and pinched some of my blood again!
I then performed the biggest shimmy seen on the top of K2 for a long time. My nurse put on some numb numbing cream ready for me to have my stitches removed. After a couple of hours the surgeons came to remove them but I dropped my shoulder and sold them a corker of a dummy. Because I had a secondary chest closure the surgeon said I should wait a few more days before removing the stitches. Ace!
Sports Saturday then commenced starting with Football Focus and then the Golf. I sat in my bouncy chair to watch the football and I was very pleased at the result. I was so pleased I performed a few big beams for my Grumps, the first ones he has seen in real life! I noticed he had tears in his eyes, they must have been tears of happiness as his and my favourite player Wayne Rooney had ended his international drought!
The day got even better, at night I watched Strictly Come Dancing with my mum and my Grandma Gwen, then the Rugby with my dad! How good is that! The day was topped off by my mum camping out on top of K2 with me! Great!
I was looked after in the day by Paula and my mum at night. Fran the nurse at night bought me a spot of Viagra to mix with a couple of other medical delicacies to help my mum a bit!
I love Saturday's. I had the bestist day today, it began with a lowish point, the pink ladies came to visit me and pinched some of my blood again!
I then performed the biggest shimmy seen on the top of K2 for a long time. My nurse put on some numb numbing cream ready for me to have my stitches removed. After a couple of hours the surgeons came to remove them but I dropped my shoulder and sold them a corker of a dummy. Because I had a secondary chest closure the surgeon said I should wait a few more days before removing the stitches. Ace!
Sports Saturday then commenced starting with Football Focus and then the Golf. I sat in my bouncy chair to watch the football and I was very pleased at the result. I was so pleased I performed a few big beams for my Grumps, the first ones he has seen in real life! I noticed he had tears in his eyes, they must have been tears of happiness as his and my favourite player Wayne Rooney had ended his international drought!
The day got even better, at night I watched Strictly Come Dancing with my mum and my Grandma Gwen, then the Rugby with my dad! How good is that! The day was topped off by my mum camping out on top of K2 with me! Great!
I was looked after in the day by Paula and my mum at night. Fran the nurse at night bought me a spot of Viagra to mix with a couple of other medical delicacies to help my mum a bit!
Saturday, October 13, 2007
Friday 12th October
Today I received a room upgrade! I have been moved from the Eastside to the Westside of the top of K2! I now have a private executive room all to myself! It has a television, a video and a window that overlooks the courtyard (Well the canteen).
The move from the East to the West constitutes being moved from the high dependency post op area to the 'normal' ward. It is ace because my mum gets to camp out with me at night! Soooo exiting!
However, I think the bullies live on the Eastside of the top of K2 because as soon as I moved into my executive room my specs got pinched! I am officially on the top of K2 without oxygen, a feat only achieved by a select few!
In the afternoon I got to sit in my bouncy chair and watch the golf with my daddy on my private TV and I wasn't sick!
I was looked after in the morning by Naomi and Sarah, in the afternoon by Maureen and by my mum at night (with a little bit of help from Rebecca) who gave me my medicines and everything. I have a feeling one of the nurses today might be the top of K2 bully because half my horse tranquilliser dose was pinched. I am only on a little bit now so I threw in a few cold turkey moments so they don't pinch it all!
The move from the East to the West constitutes being moved from the high dependency post op area to the 'normal' ward. It is ace because my mum gets to camp out with me at night! Soooo exiting!
However, I think the bullies live on the Eastside of the top of K2 because as soon as I moved into my executive room my specs got pinched! I am officially on the top of K2 without oxygen, a feat only achieved by a select few!
In the afternoon I got to sit in my bouncy chair and watch the golf with my daddy on my private TV and I wasn't sick!
I was looked after in the morning by Naomi and Sarah, in the afternoon by Maureen and by my mum at night (with a little bit of help from Rebecca) who gave me my medicines and everything. I have a feeling one of the nurses today might be the top of K2 bully because half my horse tranquilliser dose was pinched. I am only on a little bit now so I threw in a few cold turkey moments so they don't pinch it all!
Friday, October 12, 2007
Thursday 11th October
I am now ready to start my skiing career again. Even though I am intravenous free, the doctors had still left 2 'drips' in me just in case. One in my hand and one in my foot. With the drips come the splints so the drips don't get damaged. Now completely splint free and drips out I have donned my ski suit (white baby grow) and I am ready to take on the best the top of K2 can throw at me, black runs, green runs or pink ladies!
My friends at the Royal Mail have been busy, they have delivered a card especially for me all the way from the Black Country! (Well Rugely, but it sounds more exotic!) Many Thanks to Ray & Loretta for organising the delivery against all the odds!
I have uncovered a secret today, my mum and dad have bear napped one of my fluffy toys. Many weeks ago they intercepted a gift destined for me, a nice white fluffy bear, it has been living in Ronald MacDonald House all this time. Dispicable behaviour! I would like to say a belated thanks to Cotty & Ang for the bear who I have decided to call Goodthings because I was made to unjustly wait to see him. I am not sure Cotty & Ang will see this because t'internet has not fully arrived in Chapel yet (I know my friend Alfie can use it because he sent me a nice message, but he is a special little boy!) so it would be nice if someone in Dove Holes could send a smoke signal or bang the jungle drums to pass on my gratitude! Thanks!
I was looked after today by Tracey in the morning, Naomi in the afternoon and Tracey (the night shift Tracey not the same one as this morning) at night. I stepped up from 2 hourly to 3 hourly feeds and everything and I wasn't sick once! (But the couple of fixes of horse tranquilliser I got helped as well!)
My friends at the Royal Mail have been busy, they have delivered a card especially for me all the way from the Black Country! (Well Rugely, but it sounds more exotic!) Many Thanks to Ray & Loretta for organising the delivery against all the odds!
I have uncovered a secret today, my mum and dad have bear napped one of my fluffy toys. Many weeks ago they intercepted a gift destined for me, a nice white fluffy bear, it has been living in Ronald MacDonald House all this time. Dispicable behaviour! I would like to say a belated thanks to Cotty & Ang for the bear who I have decided to call Goodthings because I was made to unjustly wait to see him. I am not sure Cotty & Ang will see this because t'internet has not fully arrived in Chapel yet (I know my friend Alfie can use it because he sent me a nice message, but he is a special little boy!) so it would be nice if someone in Dove Holes could send a smoke signal or bang the jungle drums to pass on my gratitude! Thanks!
I was looked after today by Tracey in the morning, Naomi in the afternoon and Tracey (the night shift Tracey not the same one as this morning) at night. I stepped up from 2 hourly to 3 hourly feeds and everything and I wasn't sick once! (But the couple of fixes of horse tranquilliser I got helped as well!)
Thursday, October 11, 2007
Wednesday 10th October
The morning started with a visit from the Pink Ladies, I thought they had come to say hello, but they pinched some of my blood. As I don't have any 'access' any more they had to do the heel prick trick.
I was rewarded with my first bath since my operation, a nice hot soak in some Radox Herbal Relaxation. Bliss! Then the customary top of K2 weigh in, I am now piling on the pounds, I am not a fan of being size zero so I am busy trying to become curvy again.
My rehab has got a bit better and I managed to sleep for the first time in 2 days, it was so nice I carried it on all morning. In the afternoon I treated my mum and dad to some nice big smiles. The paparazzi were quick to turn up as they had heard I had been smiling, and I duly stepped up to the mark and posed for the camera.
At night we had a disco! I have got a clever singing dog called Dillon who is so clever he can make lights flash on the ceiling and walls whilst he sings!
I was looked after by Tracey in the morning, Naomi in the afternoon and Carole at night and I behaved well again most of the time.
I was rewarded with my first bath since my operation, a nice hot soak in some Radox Herbal Relaxation. Bliss! Then the customary top of K2 weigh in, I am now piling on the pounds, I am not a fan of being size zero so I am busy trying to become curvy again.
My rehab has got a bit better and I managed to sleep for the first time in 2 days, it was so nice I carried it on all morning. In the afternoon I treated my mum and dad to some nice big smiles. The paparazzi were quick to turn up as they had heard I had been smiling, and I duly stepped up to the mark and posed for the camera.
At night we had a disco! I have got a clever singing dog called Dillon who is so clever he can make lights flash on the ceiling and walls whilst he sings!
I was looked after by Tracey in the morning, Naomi in the afternoon and Carole at night and I behaved well again most of the time.
Wednesday, October 10, 2007
Tuesday 9th October
It is all nice and quiet on top of K2, just how I like it. I am back in my old bed space in a big girls cot with all my entourage of fluffy toys with me. Great!
I had my chest wires removed by the surgeon first thing and my ECG monitoring wires taken off. I am nearly wireless, only an oxygen monitoring probe and my specs attached to me so I am very easy to cuddle!
My mum and dad bought me my bouncy chair today and I got to sit in it. The chair was in my cot so I assumed my rightful position of presiding over the ward. I could see everything that was going on. After a few minutes though I decided to thank my mum and dad by throwing up all over the chair! I think I may be scared of heights!
After the clean up operation I was returned to my resting position and I decided to be nice and smile. I can confirm on Tuesday 9th October I produced my first non wind assisted smile. My mum was very happy.
The Liverpool mafia connections are working well, a big box of goodies was delivered to me today for which I would like to say thank you to my gangster friends. Due to the box containing illegal (according to the top of K2 rulebook) contraband which was smuggled onto the top of K2, I have had to give some of the goodies to my mum and dad for safe keeping until I am 18! Good things come to those who wait!
I was looked after by Tracy in the morning, Carly in the afternoon and Carole at night. I behaved very well for an 8 week old addict in rehab!
I had my chest wires removed by the surgeon first thing and my ECG monitoring wires taken off. I am nearly wireless, only an oxygen monitoring probe and my specs attached to me so I am very easy to cuddle!
My mum and dad bought me my bouncy chair today and I got to sit in it. The chair was in my cot so I assumed my rightful position of presiding over the ward. I could see everything that was going on. After a few minutes though I decided to thank my mum and dad by throwing up all over the chair! I think I may be scared of heights!
After the clean up operation I was returned to my resting position and I decided to be nice and smile. I can confirm on Tuesday 9th October I produced my first non wind assisted smile. My mum was very happy.
The Liverpool mafia connections are working well, a big box of goodies was delivered to me today for which I would like to say thank you to my gangster friends. Due to the box containing illegal (according to the top of K2 rulebook) contraband which was smuggled onto the top of K2, I have had to give some of the goodies to my mum and dad for safe keeping until I am 18! Good things come to those who wait!
I was looked after by Tracy in the morning, Carly in the afternoon and Carole at night. I behaved very well for an 8 week old addict in rehab!
Tuesday, October 9, 2007
Monday 8th October
After a brief visit to HDU I have again been evicted for disturbing the peace! I have really found my lungs so had no problem telling everyone on HDU when I wasn't happy.
Before my eviction notice was rubber stamped the nurses had to remove my arterial 'line' as well as my chest dressing so I got to show off my battle scars. After a bit of dramatic bleeding (normal.....ish) and a lot of crying this was done......and I was off. I asked my HDU nurse Jane (a different one to all the other Janes) to act as my porter and off we ascended back to the top of K2!
Back on the top of K2 the doctors did an ECG check on me and found all was well. Good work!
I am still in rehab which is not nice, the nurses are having to work hard to keep me on the wagon. I have found out there is another use for my favourite sedative, vets use it to sedate horses! Horses! I am addicted to Horse Tranquilliser!
The royal mail managed to deliver me a card today, it was from my friend Ria telling me she was doing well and wishing me well. Nice!
I was looked after on the top of K2 by Sarah who also took out my neck 'line' so I am now intravenous free! At night Irene (the top of K2 one not the ICU one) looked after me and I behaved quite well......considering.
Before my eviction notice was rubber stamped the nurses had to remove my arterial 'line' as well as my chest dressing so I got to show off my battle scars. After a bit of dramatic bleeding (normal.....ish) and a lot of crying this was done......and I was off. I asked my HDU nurse Jane (a different one to all the other Janes) to act as my porter and off we ascended back to the top of K2!
Back on the top of K2 the doctors did an ECG check on me and found all was well. Good work!
I am still in rehab which is not nice, the nurses are having to work hard to keep me on the wagon. I have found out there is another use for my favourite sedative, vets use it to sedate horses! Horses! I am addicted to Horse Tranquilliser!
The royal mail managed to deliver me a card today, it was from my friend Ria telling me she was doing well and wishing me well. Nice!
I was looked after on the top of K2 by Sarah who also took out my neck 'line' so I am now intravenous free! At night Irene (the top of K2 one not the ICU one) looked after me and I behaved quite well......considering.
Monday, October 8, 2007
Sunday 7th October
Today I got to cuddle my mum! Nice! The nurses on ICU organised it for me as a reward for doing well and being good.
However on the ward round this morning (the doctors morning meeting) the doctors told me they had received some complaints from the neighbours. Apparently I had been making too much noise crying overnight! What do they expect? I have got a weeks worth to catch up on, and I am in rehab! They have decided to evict me from Intensive Care, how dare they? I am being sent to HDU (High Dependency Unit) for a night out!
I was so shocked at my treatment I cried all the way down the corridor to HDU, but I was happy really because it means I am getting better and I had never been in there before!
I was looked after in ICU by Sarah and I have been christened a 'Drama Queen' by the ICU sisters because of my high volume demands for nappy changes. Cool!
My mum and dad have received a note from the Liverpool Mafia! I have found out that one of the nurses on top of K2 was at my friends Sian and Andy's wedding which I attended before my Alder Hey adventure began. The note said hello and maybe a few strings could be pulled to get me anything I want to help me get better and to make my stay as comfortable as possible. A few sedatives wouldn't go a miss! Brilliant and thanks to Sian for using her mafia connections for me!
I was looked after by Louise in the afternoon and Kate at night and I behaved well apart from a couple of customary hissy fits!
However on the ward round this morning (the doctors morning meeting) the doctors told me they had received some complaints from the neighbours. Apparently I had been making too much noise crying overnight! What do they expect? I have got a weeks worth to catch up on, and I am in rehab! They have decided to evict me from Intensive Care, how dare they? I am being sent to HDU (High Dependency Unit) for a night out!
I was so shocked at my treatment I cried all the way down the corridor to HDU, but I was happy really because it means I am getting better and I had never been in there before!
I was looked after in ICU by Sarah and I have been christened a 'Drama Queen' by the ICU sisters because of my high volume demands for nappy changes. Cool!
My mum and dad have received a note from the Liverpool Mafia! I have found out that one of the nurses on top of K2 was at my friends Sian and Andy's wedding which I attended before my Alder Hey adventure began. The note said hello and maybe a few strings could be pulled to get me anything I want to help me get better and to make my stay as comfortable as possible. A few sedatives wouldn't go a miss! Brilliant and thanks to Sian for using her mafia connections for me!
I was looked after by Louise in the afternoon and Kate at night and I behaved well apart from a couple of customary hissy fits!
Sunday, October 7, 2007
Saturday 6th October
I think my opportunities of taking part in the 2012 Olympics have taken a knock today. The doctors have given me Steroids! Steroids! There is no way the judges will let me take part, I was well up for throwing the hammer (I have been practicing with my dummy).
I have been allowed a dummy again as I have now come off my ventilator. I had to pass a little test of breathing into the cold ventilator wind first, but I passed with flying colours! I am now breathing all on my own. They did put me in the goldfish bowl for an hour but I have been there and done that before so I told the doctors to take me out of it, and they did! What Power! For info, the steroids were to help me come off the ventilator. Honest!
I have been busy over the last couple of weeks hunting for the top of K2 bullies who took my specs before, and I have succeeded! I am now the proud owner of a pair of oxygen specs again, I look very intellectual!
My worries about my Grandma Rita's eyesight have increased, she didn't even notice that I didn't have my ventilator in when she came to see me today! I have asked her if she wants my specs when I have finished with them. My price is a meat and potato pie!
My rehab is going well, I am playing to the rules at the moment and have behaved well since coming off the ventilator. I have been looked after by Dave today and by Sajil at night and I had a good nights sleep with only a bit of crying which I stopped when they gave me my dummy!
I have been allowed a dummy again as I have now come off my ventilator. I had to pass a little test of breathing into the cold ventilator wind first, but I passed with flying colours! I am now breathing all on my own. They did put me in the goldfish bowl for an hour but I have been there and done that before so I told the doctors to take me out of it, and they did! What Power! For info, the steroids were to help me come off the ventilator. Honest!
I have been busy over the last couple of weeks hunting for the top of K2 bullies who took my specs before, and I have succeeded! I am now the proud owner of a pair of oxygen specs again, I look very intellectual!
My worries about my Grandma Rita's eyesight have increased, she didn't even notice that I didn't have my ventilator in when she came to see me today! I have asked her if she wants my specs when I have finished with them. My price is a meat and potato pie!
My rehab is going well, I am playing to the rules at the moment and have behaved well since coming off the ventilator. I have been looked after by Dave today and by Sajil at night and I had a good nights sleep with only a bit of crying which I stopped when they gave me my dummy!
Saturday, October 6, 2007
Friday 5th October
My mum and dad have been saying I look like Hannah today. Hannah! Who else do they think I look like? What a silly thing to say! Admittedly I have decided to pass lots of fluid which has reduced some of the swelling around my face, but still? I have been wide awake as well today and having a good look at what is going on around me. Nice!
At the age of 7 weeks and 6 days I have to confess to becoming addicted to drugs. The nurses have dared to change my sedation drug today and I am not best pleased. I showed my thoughts on the change by sweating, being sick and doing wet poos. Classic symptoms of cold turkey! I was assessed by the pharmacists who have relented and given me some of my favorite drug...if I promise to go into rehab for the next few days. My rehab involves gradually reducing the amount of sedative I am having. I have accepted the offer.....for the time being.
My dad went for his hair cut and had a shave so he now looks a bit less than Shaggy from Scooby Doo. Ginger Afros...not cool! Phew. The nurses were threatening to give him a dry shave with a razor blade, he quickly left and found a barber.
I have been looked after by Katie in the day who I have kept busy cleaning and bed changing relentlessly. At night Rachel (not my mum again) looked after me and I behaved and wasn't sick once!
At the age of 7 weeks and 6 days I have to confess to becoming addicted to drugs. The nurses have dared to change my sedation drug today and I am not best pleased. I showed my thoughts on the change by sweating, being sick and doing wet poos. Classic symptoms of cold turkey! I was assessed by the pharmacists who have relented and given me some of my favorite drug...if I promise to go into rehab for the next few days. My rehab involves gradually reducing the amount of sedative I am having. I have accepted the offer.....for the time being.
My dad went for his hair cut and had a shave so he now looks a bit less than Shaggy from Scooby Doo. Ginger Afros...not cool! Phew. The nurses were threatening to give him a dry shave with a razor blade, he quickly left and found a barber.
I have been looked after by Katie in the day who I have kept busy cleaning and bed changing relentlessly. At night Rachel (not my mum again) looked after me and I behaved and wasn't sick once!
Friday, October 5, 2007
Thursday 4th October
I have found out that the baby crane has delivered me a new friend. Congratulations to Jack for his new little brother Samuel (and to his mum and dad of course). The crane also delivered me a picture of Sam, he looks nice but a bit too young for me!
I have had my chest drains taken out today so I now have no tubes coming out of my chest. I now only have a 'line' into my groin, one in my neck and a little one in my hand. My right hand is free to throw punches at anyone who comes too close!
The nurses are trying to turn me into toast, they have put a toaster above my bed to warm me up. It is really nice. Apparently 'cardiac' babies should be kept nice and warm so I have demanded my wardrobe be bought to my cot ready for when I can get dressed.
A hot air balloon landed in ICU this morning addressed to me! It has a picture of Tigger on it and it says Get Well Soon. It arrived in a big box with my name on it. Great! I would like to say thanks to my friend Oliver for flying it to Liverpool for me (and to his mum and dad for the help with the directions). Very romantic!
I have been looked after by Katie and Liz in the day and by Rachel (not my mum although she does help a bit) at night and I have been really good all night.
I have had my chest drains taken out today so I now have no tubes coming out of my chest. I now only have a 'line' into my groin, one in my neck and a little one in my hand. My right hand is free to throw punches at anyone who comes too close!
The nurses are trying to turn me into toast, they have put a toaster above my bed to warm me up. It is really nice. Apparently 'cardiac' babies should be kept nice and warm so I have demanded my wardrobe be bought to my cot ready for when I can get dressed.
A hot air balloon landed in ICU this morning addressed to me! It has a picture of Tigger on it and it says Get Well Soon. It arrived in a big box with my name on it. Great! I would like to say thanks to my friend Oliver for flying it to Liverpool for me (and to his mum and dad for the help with the directions). Very romantic!
I have been looked after by Katie and Liz in the day and by Rachel (not my mum although she does help a bit) at night and I have been really good all night.
Thursday, October 4, 2007
Wednesday 3rd October
I have had my little eyes open today, just to let all the nurses know that I am watching their every move! I also saw my mum and dad smiling and making funny faces at me. They are silly!
I had a mini tomp tomp, there was discussion about providing me with a dummy (or soother as they call them in today's pc world). I couldn't have one though because it would have interfered with my ventilator as the hospital dummies are so big.
I received a box today delivered to ICU, I was made to wait though because the surgeons wanted to close my chest. Made to wait! Who do they think they are? As my friend Alfie from Chapel will know, the doctors leave babies' chests open after surgery to provide easy access in an emergency and to keep the pressure down on the heart from the excess fluid caused by the surgery.
The job went well so I demanded my box be opened and in it was a bunch of flowers (I now know what they are). Not a real bunch of flowers obviously because they are not allowed on ICU, but a bunch which had a hat and some socks rolled up to look like roses. Brilliant!
It was well timed because my pink & white striped Alder Hey christening hat was contaminated during the chest closing so I had to dispatch it for dry cleaning. I would like to say thank you to my friends Izzy and Gracie for organising the sock flowers! (I am sure their mum and dad had nothing to do with it)
I was looked after by Katie and Liz in the day and Irene at night and I behaved well....most of the time!
I had a mini tomp tomp, there was discussion about providing me with a dummy (or soother as they call them in today's pc world). I couldn't have one though because it would have interfered with my ventilator as the hospital dummies are so big.
I received a box today delivered to ICU, I was made to wait though because the surgeons wanted to close my chest. Made to wait! Who do they think they are? As my friend Alfie from Chapel will know, the doctors leave babies' chests open after surgery to provide easy access in an emergency and to keep the pressure down on the heart from the excess fluid caused by the surgery.
The job went well so I demanded my box be opened and in it was a bunch of flowers (I now know what they are). Not a real bunch of flowers obviously because they are not allowed on ICU, but a bunch which had a hat and some socks rolled up to look like roses. Brilliant!
It was well timed because my pink & white striped Alder Hey christening hat was contaminated during the chest closing so I had to dispatch it for dry cleaning. I would like to say thank you to my friends Izzy and Gracie for organising the sock flowers! (I am sure their mum and dad had nothing to do with it)
I was looked after by Katie and Liz in the day and Irene at night and I behaved well....most of the time!
Wednesday, October 3, 2007
Tuesday 2nd October
I actually stuck to a plan! The surgeon had left strict instructions with the night shift doctors and nurses on how I should behave, and I behaved! My mum and dad were very happy.
Claire (my ICU nurse from the first three nights) came to see me and said that I had done an enormous 'Hannah Do' over the weekend, it made everyone chuckle.
I have got my Alder Hey pink & white striped hat on, the same one I wore for my christening. My mum has got matching team colours on, her t shirt is pink and white striped as well. We do look cool!
On Friday I received a gift from the baby next door to me on top of K2. The baby was called Matthew and he was busy recovering from his operation, he had taken my 'slot' on Wednesday when I decided to postpone my operation. Matthew sent his mum Sarah and dad Richard to the puppy shop and they came back with a nice pink and white fluffy dog with the cutest eyes ever. I am a bit worried about a colour clash though, my real life dog Chester is ginger and white, just like my dad!
I have been visited by lots of people again today, Shirley who has been looking after me says she is under pressure as she is in the public eye. Irene also looked after me as well.
At night Helen (the same one as last night) looked after me again and I had a really nice sleep.
Claire (my ICU nurse from the first three nights) came to see me and said that I had done an enormous 'Hannah Do' over the weekend, it made everyone chuckle.
I have got my Alder Hey pink & white striped hat on, the same one I wore for my christening. My mum has got matching team colours on, her t shirt is pink and white striped as well. We do look cool!
On Friday I received a gift from the baby next door to me on top of K2. The baby was called Matthew and he was busy recovering from his operation, he had taken my 'slot' on Wednesday when I decided to postpone my operation. Matthew sent his mum Sarah and dad Richard to the puppy shop and they came back with a nice pink and white fluffy dog with the cutest eyes ever. I am a bit worried about a colour clash though, my real life dog Chester is ginger and white, just like my dad!
I have been visited by lots of people again today, Shirley who has been looking after me says she is under pressure as she is in the public eye. Irene also looked after me as well.
At night Helen (the same one as last night) looked after me again and I had a really nice sleep.
Tuesday, October 2, 2007
Monday 1st October
The beginning of a new month! Today I created quite a fuss within Alder Hey as many people came to visit me and my ECMO machine. They had found out that I was being taken off the machine this morning so were keen to support me. I am quite a celebrity at the moment.
As there was quite a crowd I thought I would perform, so I came off the ECMO and my heart and lungs had to do all their own work (With a little bit of help from some other machines of course!). After a couple of hours on my own the doctors decided to completely detach me from the machine, very scary! But I behaved impeccably.
I have received some artwork today, I think it is from my cousin Jake, but I will have to hire a private detective to investigate further. It is very good work though, I am very impressed!
The nurses are still arguing with my dad, they are now trying to say Derek the Donkey is a Zebra! OK he has got stripes but they are lilac and white, not black and white. I am standing firm with my dad on this one, Derek is a Donkey!
I have had a nice wash and now have nice clean sheets and my friends Aurora, Ted and Maximoo are back in my cot, Cerys is there as usual. I was looked after by Gillian, Alison and Sharon in the day, they gave me three nurses today! This was the agreed compromise as they have now taken one of my ICU bays away from me.
At night I was looked after by Helen (the same one as last night) and Jane (the same one as yesterday day, not yesterday night or the first ICU Jane) and I behaved all night. I can be nice sometimes.
As there was quite a crowd I thought I would perform, so I came off the ECMO and my heart and lungs had to do all their own work (With a little bit of help from some other machines of course!). After a couple of hours on my own the doctors decided to completely detach me from the machine, very scary! But I behaved impeccably.
I have received some artwork today, I think it is from my cousin Jake, but I will have to hire a private detective to investigate further. It is very good work though, I am very impressed!
The nurses are still arguing with my dad, they are now trying to say Derek the Donkey is a Zebra! OK he has got stripes but they are lilac and white, not black and white. I am standing firm with my dad on this one, Derek is a Donkey!
I have had a nice wash and now have nice clean sheets and my friends Aurora, Ted and Maximoo are back in my cot, Cerys is there as usual. I was looked after by Gillian, Alison and Sharon in the day, they gave me three nurses today! This was the agreed compromise as they have now taken one of my ICU bays away from me.
At night I was looked after by Helen (the same one as last night) and Jane (the same one as yesterday day, not yesterday night or the first ICU Jane) and I behaved all night. I can be nice sometimes.
Monday, October 1, 2007
Sunday 30th September
Sunday, a day of rest!
I have had another trip today to the catheter theatre for some more investigation. This is a huge job for the doctors and nurses because of the amount of kit I demand that comes with me.
I also had a perfusionist who came to look after me, all the way from Leicester so the Alder Hey people could have a rest. I would like to say thank you, I appreciate it very much.
My friends Aurora the Tiger, Maximoo the Moomin and Ted the Bear were allowed in my cot for a while today. Cerys is with me as usual all day and all night. There has been much debate over Cerys, the nurses are ganging up against my dad and trying to say Cerys is a Giraffe. A Giraffe! They are so silly, Cerys is a Welsh Camel, the fact that she doesn't have any humps is because this hospital is very warm and she has lost all her fluids and the nurses will not treat animals.
My dad told me he wasn't allowed to have any peas with his tea. My Grandma Gwen thinks he doesn't like them so he got carrots and runner beans. My mum got peas, my dad says he is not happy because he likes peas.
I also received a gift from Dove Holes Harvest, my cousins Harry, Jake and Josh sent lots of fruit and hot chocolate, my mum and dad appreciated it very much.
I was looked after by Jane, Shirley and Tina in the day and Jane (who looked after me before in ICU, but not the first Jane) and Helen (Not the Helen who looked after me the first time in ICU as well). Helen played some CD's for me which was nice and I had a quiet night on the ECMO machine.
I have had another trip today to the catheter theatre for some more investigation. This is a huge job for the doctors and nurses because of the amount of kit I demand that comes with me.
I also had a perfusionist who came to look after me, all the way from Leicester so the Alder Hey people could have a rest. I would like to say thank you, I appreciate it very much.
My friends Aurora the Tiger, Maximoo the Moomin and Ted the Bear were allowed in my cot for a while today. Cerys is with me as usual all day and all night. There has been much debate over Cerys, the nurses are ganging up against my dad and trying to say Cerys is a Giraffe. A Giraffe! They are so silly, Cerys is a Welsh Camel, the fact that she doesn't have any humps is because this hospital is very warm and she has lost all her fluids and the nurses will not treat animals.
My dad told me he wasn't allowed to have any peas with his tea. My Grandma Gwen thinks he doesn't like them so he got carrots and runner beans. My mum got peas, my dad says he is not happy because he likes peas.
I also received a gift from Dove Holes Harvest, my cousins Harry, Jake and Josh sent lots of fruit and hot chocolate, my mum and dad appreciated it very much.
I was looked after by Jane, Shirley and Tina in the day and Jane (who looked after me before in ICU, but not the first Jane) and Helen (Not the Helen who looked after me the first time in ICU as well). Helen played some CD's for me which was nice and I had a quiet night on the ECMO machine.
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